
Resources
The Caregiver Coallition of the Midlands Committee put together a list of our favorite reads that we hope might help you find perhaps the right nugget of information that helps you in your role as a caregiver. They were chosen knowing that caregivers have very little time to sit down and read. Some of them are great to read just a page at a time, others a chapter, and others as a resource to reference. Below are our summaries of these resources.

The Caregiver’s Companion
Author: Carolyn A. Brent, MB
​Published: 2021 Hanover Square Press.
This book is an easy read to follow. It offers inspirational wisdom of the writer’s life lessons while caring for her dad. An excellent road map to guide caregivers through their journey of caregiving.
Introduction: Talk early, Talk Often: My Caregiver Story
Chapter 1: When Should You Step in?
Chapter 2: Caring for Your Loved One at Home
Chapter 3: Moving Your Aging Loved One into an Assisted-Living Facility or a Nursing Home
Chapter 4: Emergencies and Life-or-Death Decisions
Chapter 5: Hospice Care for the End of Life
Chapter 6: Crucial Emotional Conversations
Chapter 7: Crucial Financial Conversations
Chapter 8: How to Have Crucial Conversations When Your Aging Loved One is Resistant
Chapter 9: Crucial Legal Conversations
Chapter 10: Taking Care of Yourself When You Are a Caregiver
Chapter 11: Eight Steps to Managing Caregiver Stress
Chapter 12: Incorporating Meditation into Self-Care
Chapter 13: The Caregiver’s At-a-Glance Sheet
Acknowledgements: The Caregiver’s Empowerment Strategy Resources- Programs and Services to Help the Caregivers

Being Mortal: Medicine and What Matters in the End
Author: Atul Gawande
Date: 2014; Publisher: Henry Holt & Company
This book clarifies the conversations we need to have with elderly loved ones. It highlights a need to not shut down conversations when they mention death but to engage in meaningful discussion about the individual’s personal wishes. It helps clarify the value of hospice and that it can actually help you identify how to have your best days with the days that you have left. This book is so real and helps me realize that we can purpose to have a good life for the entire time that we are on this earth.
Chapter 1 The Independent Self
Chapter 2 Things Fall Apart
Chapter 3 Dependence
Chapter 4 Assistance
Chapter 5 A Better Life
Chapter 6 Letting Go
Chapter 7 Hard Conversations
Chapter 8 Courage

Grace and Grit
Author: Fritzi Gros-Daillon
This book shares true stories of older adults facing difficult life transitions and the children who walk that journey beside them. Told through the eyes of a senior move management company owner in New York, it features nine compelling accounts that reveal the emotional, practical, and deeply human side of helping loved ones relocate.
Through each story, the author offers powerful lessons in kindness, empathy, and patience—qualities essential for anyone caring for aging parents. Readers will find themselves immersed in the full spectrum of emotions that accompany caregiving, from frustration to gratitude.
This book is an invaluable guide for those just beginning the journey of supporting loved ones through later-life changes—offering a touching reminder of the grace and grit that define the aging experience.

How to Say It® to Seniors: Closing the Communication Gap
with Our Elders
Author: David Solie, M.S., P.A , September 7, 2004 Published: Prentice Hall Press (New York)
How to Say It to Seniors explains why communication with older adults can be challenging and how to bridge the gap. Solie shows that seniors are navigating two vital developmental tasks: maintaining control over their lives and leaving a legacy of meaning and wisdom. Misunderstandings often arise when families or caregivers unintentionally take away control by “fixing” problems too quickly. Practical strategies include asking instead of telling, slowing conversations, and listening for stories that carry legacy themes. For example, instead of saying, “You need to move into assisted living,” a better approach is, “What’s most important to you in your living situation right now?” Or, rather than “Don’t worry, I’ll handle your finances,” try, “Would you like me to take the lead, or would you prefer to review options together?” The book emphasizes collaboration, respect, and empathy—helping seniors feel heard and valued.
Table of Contents Introduction (page 1)
Part 1: Holding On and Letting Go: The Unappreciated Agendas of Older Adults
1. Different Missions, Different Agendas: How the Aging Process Affects Communication (p. 11)
2. The Need for Control (p. 22)
3. Legacy: The Need to Be Remembered (p. 35)
Part 2: The Everyday World of Older Adults: How It Looks, How It Feels, How It Sounds
4. The Myth of Diminished Capacity (p. 49)
5. The Communication Habits of the Elderly: What Do They Look Like? How Do They Sound? What Do They Reveal? (p. 60)
6. The Predictable Dilemmas of Getting Old (p. 86)
Part 3: New Strategies for Communicating with Older Adults
7. Why Is This So Hard? Expectations, Progress, and Setbacks in Building Better Relationships with Older Adults (p. 109)
8. Figuring Out the Right Signals: Hidden Communication Challenges in Everyday Living (p. 118)
9. Returning Control to Its Rightful Owner (p. 141)
10. Discovering Organic Legacy (p. 157)
Bibliography, Glossary, Notes, Index

Weeds In Nana’s Garden
Author: Kathryn Harrison
Published: Flipturn Publishing 2016
Weeds In Nana’s Garden does a good job of showing the changes that often happen in a dementia patient, starting with normal cognitive ability progressing all the way to memory care. It clearly articulates the sadness of these changes, while being a bright book that speaks to goodness in spite of the change. This selection is candid in defining dementia and stating the brain changes it brings, which is very refreshing. This book even has a question and answer portion in the back filled with helpful information and talking points for comprehension. I recommend this book for children.

A Doll For Grandma
Author: Paulette Bochnig Sharkey
Published: Beaming Books 2020
A Doll for Grandma would be a good resource for children whose grandparent is in need of, or have a doll. It delicately shows this as a positive change. This book selection shows the before and after behaviors of dementia well, even noting aspects like a change in footwear and flat stares. It is illustrated nicely, and I recommend it for children and families navigating dementia.

The Remember Balloons
Author: Jessie Oliveros
Published: Simon & Schuster 2018
This book has some really lovely illustrations. It also has “memories” of beautiful stories that will resonate with parents as they read this to children. It shows happiness, confusion, and even anger which is nice for those navigating a myriad of emotions about dementia. Where this book fails is that it is too abstract. Children are concrete thinkers, and this selection only refers to memories as balloons. I would not recommend this selection for children as a comprehension resource. I do feel that it could be utilized for parents to process emotions concerning the decline of a loved one.

Wilfred Gordon McDonald Partridge
Author: Mem Fox
Published: Kane/Miller Book Publishers 1984
This book speaks of a young boy who lives next to a community for “old people”. It is a beautiful example of the individualities of residents as well as the ability of older adults (even with memory issues) to have lovely relationships. This resource is light hearted and filled with goodness. Many of the statements in the book would be perfect for follow up conversation with a child. The illustrations are over the top in the best way possible. This book will make you smile, and I recommend it for children and families.

Keeping Love Alive As Memories Fade
Authors: Deborah Barr, MA; Edward G. Shaw, MD; and Gary Chapman, PhD
Published: Northfield Publishing; 2016
This book explores how to connect with loved ones diagnosed with dementia using the principles of the 5 Love Languages. Through personal stories and case studies, the book breaks down the science of dementia in easy-to-understand language and offers practical tips for caregivers and families. For those looking for a way to better understand and improve connection with their loved one suffering from dementia (while caring for themselves in the process), this is a great resource.
Table of Contents:
1. Ed and Rebecca: A Love Story
2. Love: It’s All in Your Head
3. Alzheimer’s Disease Puts Love to the Test
4. Every Day Is the Best Day
5. Facilitating Love
6. Stories of Hesed
7. Voices of Experience
8. The Journey No One Wants to Take
Appendix A: 40 Ways to Say “I Love You” in Middle- and Late-Stage Dementia
Appendix B: For Those Who Want to Know More
Appendix C: Suggested Resources

The 36-Hour Day
Authors: Nancy L. Mace, MA and Peter V. Rabins, MD, MPH
Published: Johns Hopkins University Press; 2017
This research-based book is a comprehensive guide that provides practical tips and support for caregivers of individuals diagnosed with dementia. It explains the nature of the disease and offers practical care strategies. The book emphasizes understanding dementia’s effects, managing daily challenges, and
maintaining the well-being of caregivers to improve the quality of life for both the caregiver and the person receiving care.
At 373 pages in length, this book can feel overwhelming to the reader. However, if used as a resource by looking up specific topics or questions, it can provide thorough, well-researched guidance for those who want a deeper understanding of the disease and how best to care for their loved one.
Table of Contents:
1. Dementia
2. Getting Medical Help for the Person Who Has Dementia
3. Characteristic Behavioral Symptoms in People Who Have Dementia
4. Problems in Independent Living
5. Problems Arising in Daily Care
6. Medical Problems
7. Managing the Behavioral and Neuropsychiatric Symptoms of Dementia
8. Symptoms Associated with Mood Change and Suspiciousness
9. Special Arrangements If You Become Ill
10. Getting Outside Helps
11. You and the Person Who Has Dementia
12. How Caring for a Person Who Has Dementia Affects You
13. Caring for Yourself
14. For Children and Teenagers
15. Financial and Legal Issues
16. Long-Term Care Arrangements
17. Preventing and Delaying Cognitive Decline
18. Brain Disorders and the Causes of Dementia
19. Research in Dementia

When Caregiving Calls: Guidance as You Care for a Parent, Spouse, or Aging Relative
Author: Aaron Blight, Ed.D.
Published: Rivertown Books; 2020
This book offers guidance and support for those caring for aging or disabled loved ones. It discusses the emotional and practical challenges of caregiving, offers insights and strategies to help caregivers manage their responsibilities while reflecting on their own needs and experiences. Each chapter provides thoughtful discussions about the complexities of caregiving and invites the reader to reflect on their own needs and experiences in their role as a caregiver. This book is a wonderful resource for both new and seasoned caregivers who wish to learn more and be validated in their role.
Table of Contents:
1. Conversation
2. Roles
3. Relationship
4. Family
5. Time
6. Work
7. Body
8. Mind
9. Home
10. Independence
11. Loneliness
12. Emotion
13. Providers
14. Skills
15. Rewards
16. Faith
17. Next Steps
Afterword
Acknowledgements
Recommended Additional Reading
Index
